The disease afflicts 1 in 2 million people worldwide with less than 400 patients diagnosed in the U.S. There is no treatment for this disease other than pain management but researchers have been making huge strides toward a cure in the last three years.
Most of the research for FOP is privately funded along with small grants from the Bone and Joint Foundation that President George W. Bush helped create to help in the research of diseases such as FOP.
“The main reason we have taken this disease head on is our founder, Nick Mahler, is a FOP patient,” the company said. “Nick’s body has gradually been taken over by FOP and has restricted all movement in his joints except for his elbows and some wrist movement.”
For more information, visit IFOPA.org.
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